- Description
- The clinic has a team of healthcare specialists who provide rehab services to patients with Rett syndrome (a rare genetic disorder that affects how the brain develops, causing severe physical and mental disability) and their families.
People with Rett syndrome have many complex health needs and gradually lose skills over time. Patients and their families attend the clinic once a year if needed, with various specialists scheduled based on their needs. Families must travel and stay with their child for a full day of appointments at Glenrose.
Note:
- people with newly diagnosed MECP2 (methyl CpG binding protein 2) genetic differences will be looked at individually
- adults with confirmed Rett syndrome are also evaluated individually
Key Provider: dietitians, occupational therapists (OTs), pediatricians, physiatrists, physical therapists (PTs), registered nurses (RNs), social workers, speech-language pathologists (SLPs) - Eligibility
- Yes, The service is targeted to:
- children and youth (0 to 18 years of age) with Rett Syndrome
- persons presenting with criteria for the genetic condition and a multidisciplinary need
- adults with genetic confirmation of Rett Syndrome are evaluated on a case-by-case basis
- Application Process
- Service Access: Professional Referral Required, Healthcare providers should consult the Alberta Referral Directory for service referral information.
Referral Process: No
Waiting Period: N/A,
- Telephone
- 780-735-6333
- Fax
- 780-735-6104
- Languages
- Interpreter/Translation services
- Fees
- Fee: No
Fee Reduction: N/A
Membership Fee: N/A - Accessibility
- Wheelchair access: Yes - Accessible and public parking are available on designated surface and underground parking stalls.
Pay by plate parking is available.
Other disabled access: Yes - Ramps and wheelchair accessible washrooms. - Agency Information
- View Agency Profile
- Last Verified On
- April 3, 2024
- Address
- 10230 111 Avenue NW
Edmonton, AB, T5G 0B7There is no Emergency Department at this facility.
Open in Google Maps - Hours of Operation
- Thu09:00 AM to 04:00 PM
The Rett Clinic occurs four times per year (on the 5th Thursday of the month only).
